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Helpful Links

Alzheimers.gov
The government's resource for Alzheimer's and related dementias. For the people helping people with Alzheimer's.

Alzheimer's Association - [PDF] "2013 Alzheimer's Disease Facts and Figures"
The Alzheimer's Association is the leading, global voluntary health organization in Alzheimer's care and support, and the largest private, nonprofit funder of Alzheimer's research. Learn what is "Inside the Brain: An Interactive Tour."

Alzheimer's Disease Cooperative Study (ADCS)
The ADCS is a major initiative for Alzheimer's disease (AD) clinical studies in the Federal government, addressing treatments for both cognitive and behavioral symptoms. This is part of the NIA Neuroscience and Neuropsychology of Aging Program's effort to facilitate the discovery, development and testing of new drugs for the treatment of AD and also is part of the Alzheimer's Disease Prevention Initiative.

Alzheimer's Disease Education & Referral Center (ADEAR)
The National Institute on Aging (NIA) - one of the 27 Institutes and Centers of the National Institutes of Health (NIH) - has been at the forefront of the Nation's research activities dedicated to understanding the nature of aging, supporting the health and well being of older adults, and extending healthy, active years of life for more people. [Caregiving Tip Sheets and Resource Lists]

Alzheimer's Drug Discovery Foundation (ADDF)
The Alzheimer's Drug Discovery Foundation (ADDF) - formerly, Institute for the Study of Aging - is the only non-profit organization whose sole mission is to accelerate the discovery and development of drugs to prevent, treat and cure Alzheimer's disease, related dementias and cognitive aging.

Alzheimer's Foundation of America
The Alzheimer's Foundation of America is to provide optimal care and services to individuals confronting dementia, and to their caregivers and families-through member organizations dedicated to improving quality of life.

American Academy of Neurology (AAN) - [PDF] "AAN Guideline Summary for Patients and Their Families"
American Academy of Neurology (AAN) is an international professional association of more than 25,000 neurologist, and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care and enhance member career satisfaction.

ARCH National Respite Network and Resource Center
The ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

Association for Frontotemporal Dementias (AFTD)
The Association for Frontotemporal Degeneration (AFTD) is a non-profit organization whose mission is to 1) promote and fund research into finding the cause, therapies and cures for frontotemporal degeneration, 2) provide information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers, 3) educate physicians and allied health professionals about frontotemporal degeneration and how to improve patient care, 4) bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it, 5) advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality, long-term health care and social services, and 6) facilitate the international exchange of ideas.

Bright Focus™ Foundation
Bright Focus Foundation is the new name for American Health Assistance Foundation. It seeks to eradicate age-related degenerative diseases by: advancing research seeking causes, prevention, treatment, and cures; promoting positive behaviors to combat these diseases; and facilitating the public's efforts to assist those who are affected.

California Alzheimer's Disease Centers (CADC)
The State of California established the Alzheimer's Disease Program (ADP) through legislation that sought to 1) improve health care delivery to persons affected by Alzheimer's disease and their caregivers, 2) provide training and education to health care professionals, students, patients, caregivers and community, and 3) advance diagnosis and treatment of Alzheimer's disease and other dementias. To carry out this mandate, the ADP established a network of ten dementia care Centers of Excellence at California medical schools. These California Alzheimer's Disease Centers (CADCs) effectively and efficiently improve AD health care delivery, provide specialized training and education to health care professionals and others, and advance the diagnosis and treatment of AD.

California Department of Public Health (CDPH) / California Alzheimer's Disease Program (ADP) - [PDF] "Guideline for AD Management"
The Alzheimer's Disease Program (ADP) was established through legislation that sought to relieve the human burden and economic costs associated with Alzheimer's disease and related dementias (ADRD), and to assist in ultimately discovering the cause, treatment, and prevention of these diseases.

Family Caregiver Alliance (FCA)/ National Center on Caregiving
Family Caregiver Alliance (FCA) was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. It offers programs at national, state and local levels to support and sustain caregivers.

John Douglas French Alzheimer's Foundation
The Mission of The John Douglas French Alzheimer's Foundation is to serve as a venture catalyst to provide critical seed money for novel and promising Alzheimer's research, generally not funded by the government or pharmaceuticals.

Lewy Body Dementia Association (LBDA)
The Lewy Body Dementia Association (LBDA) is a nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.

National Alzheimer's Coordinating Center (NACC)
National Alzheimer's Coordinating Center (NACC) is to facilitate collaborative research. Using data collected from the 29 NIA-funded Alzheimer's Disease Centers (ADCs) across the United States, NACC has developed and maintains a large relational database of standardized clinical and neuropathological research data.

National Cell Repository for Alzheimer's Disease (NCRAD)
The goal of the National Cell Repository for Alzheimer's Disease (NCRAD) is to help researchers find genes that increase the risk for Alzheimer's disease (AD) and dementia.

National Family Caregivers Association (NFCA)
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.

National Hospice and Palliative Care Organization (NHPCO) /Natl. Hospice Foundation
National Hospice and Palliative Care Organization (NHPCO) is a charitable organization advocating for the needs of people facing life-limiting illness. Today, NHPCO is the world's largest and most innovative national membership organization devoted exclusively to promoting access to hospice and palliative care and to maintaining quality care for persons facing the end of life and their families.

National Institute of Mental Health (NIMH)
The mission of National Institute of Mental Health (NIMH) is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery, and cure.

National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) is dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Story Corps - Every Voice Matters.
An independent nonprofit whose mission is to provide Americans of all backgrounds and beliefs with the opportunity to record, share, and preserve the stories of our lives.

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